An Update

It has been almost a year since I have updated this blog with anything new.

I would like to say that this is because there is nothing new to add, however, unfortunately, it is quite the reverse! After trying to live with the INTAC implant for a year, and with numerous contact lenses tried and failed to sit over the top of it, I made the decision to reverse the process.

The good news was that this was a simple enough process, a little painful but in the big scheme of things, not too bad. My vision fluctuated a bit and I felt a little dizzy, but for the most part there have been no additional ill effects from its removal. Since this, two months ago, I am now trying a larger lens again. However, again my vision is still poor even with this new lens which I had hoped would not be the case – whether this is because I have let my left eye grow weak from a lack of use (given the poor vision I got from it the last year) or simply because the lens is a bad match, I don’t know. I am just trying to live with it mostly.

I am now going to try and seek a referral to Moorfields, in the hopes that their experience may yield some results.

Until the next update  (I’ll try not to leave it a year next time!)

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4 thoughts on “An Update

  1. I just left you a response on your “INTACs on left eye” post. Sorry, I should have kept reading and would have found that you did remove them and doing so was a worthwhile effort if they are not creating the desired effect. I’m really frustrated and hope something new can work for me. Thank you for your blog.

    • Hi Rich thanks for your comments. I’m glad my blog has helped you in some way. After having the Intact removed my left eye is still weaker in my opinion than before, but I am glad it was removed because the device did not help me at least in its current iteration.

      Currently I am speaking with Moorfields with a view to changing contact lenses.

  2. Hi Alex,

    Thank you for your blog-it’s really informative and helpful! I’ve only just started my blog but I’m really excited by the amount of support I’m finding on wordpress from other people with Keratoconus like yourself. Right now, I’m struggling with my Ferrara ring surgery and it’s been a huge help to read through some other people’s experiences. I haven’t found a lot of info on Ferrara rings specifically and most of the reports I’ve been reading about regular Intacs are similar to mine.

    I hope you don’t give up! I stopped wearing my lenses for four years and it was a nice break but those were four years of vision I lost and my Keratoconus continued to progress 😦 There are so many options out there!!! We are all rooting for you and wish you the very best. Keep us all updated on how things are going with your KC!

    All the best,
    Autumn

  3. Ive just been diagnosed with it. My vision is not too terrible. I have one stronger eye that does all the work and one terrible eye that cannot see much. How quick does the eye deteriorate? Also, I have been told that cross linking is the way to go? I read all your blog but other than that, I don’t have much else to go on. If anyone else with KC is reading this and can help me, please either email me at melikse@live.co.uk or add me on facebook at http://www.facebook.com/fewdiddlers

    Thanks

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