About this site

There are a lot of websites out there which tell you about Keratoconus from a medical perspective, that tell you the facts of the condition. I wanted to write a blog that dealt with my own personal experience of Keratoconus.

I was diagnosed with the condition in 2008. Relatively speaking, I’ve only lived with the condition for four years, and there are many people who have had to live with this for a lot longer in their lives. There is another, brilliant blog on WordPress from Jon Severs, who has had KC for 16 years. His experiences have been very different to mine in many ways, and I would recommend that anyone who is interested in the condition or who has KC to read his own blog too as it offers another personal perspective on Keratoconus.

Despite my diagnosis being recent, it has been quite a rollercoaster four years. If there is anything I have managed to get from my own experiences and reading those of others on forums, it’s that this seems to be the norm for people with this condition. If you have Keratoconus, then patience and, I think, a sense of humour are a virtue. But especially patience. And a good chauffeur to the hospital. And a book.

That is not to say that this is the worst condition in the world. There are many other diseases that are much more brutal, and in context to them, and to anyone who is scared about living with Keratoconus, I would say that perspective is a very important thing when dealing with this condition. Yes, it can make life extremely difficult, and yes, there are difficult times ahead. But it is not terminal in the sense that it does not stop life completely, even if it might feel that way sometimes. And I have found that writing about it and talking to people helps a great deal.

My blog is divided up into sections, from my diagnosis up to present, where I will update as I move forward. I hope someone finds this useful. And yes, that is my eye.

8 thoughts on “About this site

  1. Love your blog, in fact arrived by checking yahoo and google for a comparable issue to this post. Which means this might be a late post nevertheless keep up the great work.

  2. I came across your blog because I googled Keratoconus and Dizziness. I’ve been diagnosed with Keratoconus for about 10 years now. It’s has progressed and for the last 6-7 years I haven’t been able to have my vision corrected with classes. Due to sensitive eyes I actually have to piggyback a hard contact lens over a soft. However since last July (2012) I’ve experience constant light headedness and dizziness. I’ve been to balance clinics, doctors, etc which haven’t helped. I saw your post on dizziness from a while ago and wondered if you had found anything that helped. My dizziness seems to be worst when I am sitting at a computer, but it exists almost all the time. I’ve learned to cope with it, but wish I could find a solution.

    • Hi Mike

      Thanks for the post.

      To be honest I haven’t rly got rid of the dizziness it just comes and goes in intensity and I try to work in coping mechanisms to deal with the feeling and anxiety it brings.

      It’s worst for me in busy places or shops where my eyes seem to struggle to cope with everything going on! Supermarkets are a prime example.

      Perhaps try to keep a log of the worst times and see if there is a pattern. You might then me able to adjust something to help you.

      All the best

  3. Hi there! I know I’m a bit late jumping into this, but your blog has been the most realistic experience in describing what it feels like to have keratconus. I have gone through almost the exact same experience as you have, and it is a little bit of relief to know someone out there feels the way I do. After failed attempts at scleral lenses, I had Intacs placed into my left eye. 4 months post surgery I have no successful results and everything is still a blurred mess.

    I don’t know if you check this blog still currently, but I would love to hear an email from you on how things are currently. I am 21 years old and am seeking every option out there, because I refuse to let this condition get the best of my life.

    Whether or not I hear from you, thank you for the wisdom shared on this website.
    Wishing you the best.

    • Hi Cassidy thanks for the comment and i’m really pleased that the blog has helped you in some way. I do still add to the blog but there hasnt been a lot to report to be honest. I currently use semi scleral (haptic) lenses in my eyes and my right eye is good. Left eye isnt so good and is a pain. I have recently gotten into a bad habit of not wearing my lenses and squinting my way through the day, which isnt good but saves me time putting the lenses in! If i can be of any help drop me a line. All the best.

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