Ajmartin's Keratoconus Blog

There are a lot of websites out there which tell you about Keratoconus from a medical perspective, that tell you the facts of the condition. I wanted to write a blog that dealt with my own personal experience of Keratoconus.

I was diagnosed with the condition in 2008. Relatively speaking, I’ve only lived with the condition for four years, and there are many people who have had to live with this for a lot longer in their lives. There is another, brilliant blog on WordPress from Jon Severs, who has had KC for 16 years. His experiences have been very different to mine in many ways, and I would recommend that anyone who is interested in the condition or who has KC to read his own blog too as it offers another personal perspective on Keratoconus.

Despite my diagnosis being recent, it has been quite a rollercoaster four years. If there is anything I have managed to get from my own experiences and reading those of others on forums, it’s that this seems to be the norm for people with this condition. If you have Keratoconus, then patience and, I think, a sense of humour are a virtue. But especially patience. And a good chauffeur to the hospital. And a book.

That is not to say that this is the worst condition in the world. There are many other diseases that are much more brutal, and in context to them, and to anyone who is scared about living with Keratoconus, I would say that perspective is a very important thing when dealing with this condition. Yes, it can make life extremely difficult, and yes, there are difficult times ahead. But it is not terminal in the sense that it does not stop life completely, even if it might feel that way sometimes. And I have found that writing about it and talking to people helps a great deal.

My blog is divided up into sections, from my diagnosis up to present, where I will update as I move forward. I hope someone finds this useful. And yes, that is my eye.